About Lennox-Gastaut Syndrome (LGS)
What is LGS?
LGS is a severe and rare form of epilepsy. It is generally diagnosed between the ages of 3 and 5, but some people aren’t correctly diagnosed until much later. LGS accounts for 2% to 5% of childhood epilepsies. People with LGS have many different types of seizures, and the condition can be complex to manage. Some people with LGS also experience cognitive and behavioral challenges. LGS can be challenging. Learning all you can about the condition and keeping in close contact with your healthcare team can help you bring the best possible care to your loved one.
It’s easy to feel alone or overwhelmed when someone you love has LGS.
But there are resources and communities to help.
Life with LGS can bring many challenges
People with LGS usually have lifelong issues with intellectual development, social functioning, and independent living. They often rely heavily on parents, siblings, and other caregivers for help.
Giving medication is an important part of managing LGS
Medication is a part of daily life. But with LGS, administering medication to someone can be challenging if that person has:
It’s important for patients with LGS to take their full dose of medication, as prescribed by their doctor. As a caregiver, you may look for other ways to give medication to your loved one with LGS—such as crushing pills or using liquid medications.
Clobazam—an important medicine in LGS
Clobazam, also known as Onfi®, is an anticonvulsant. It’s used for the treatment of epileptic seizures associated with LGS. Doctors often prescribe clobazam along with other medications. Clobazam was introduced in Europe in the 1970s and was approved for use in the United States in 2011 under the brand name Onfi.
Until now, clobazam only came in Onfi tablets or liquid
With new SYMPAZAN, clobazam is available in a convenient film. That gives you and your doctor another way to give this important medicine to the person you’re caring for.